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November 2019

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2019
November

Sickle Cell Community Annual Children’s Christmas Party

Thank you for registering your family for the Sickle Cell Community’s Annual Children’s Christmas Party. Registration ensures that every child has an opportunity to receive a gift. 1 (One) gift [...]

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Nov 22, 2019
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Navigating The New Norm: Sickle Cell Style

Sickle Cell Patient COVID-19 Checklist

Sickle Cell Patient COVID-19 Checklist

Sickle Cell Patient COVID-19 Checklist

5 Tips to Spot & Stop The Spread of Misinformation During COVID-19 (and in general)

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Advocacy1 Awareness10 Community News2 Counselling & Support1 Education6 Fundraising Event1 In The News7 Interviews2 Press Release1 Public Service Announcements5 Sickle Cell Awareness Day2 Sickle Cell Awareness Month3 Treatment2

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Sickle Cell Association of Ontario @SickleCellON

1 month ago

Happy Holidays & a heartfelt thank you to everyone who has supported the SCAO throughout what has been a remarkable… twitter.com/i/web/status/1…

Sickle Cell Association of Ontario @SickleCellON

2 months ago

The Improve Access to Healthcare Act will not only put an end to many of these barriers but help save the healthcar… twitter.com/i/web/status/1…

Sickle Cell Association of Ontario @SickleCellON

2 months ago

SPECIAL COMMUNITY TOWN HALL :: The Improve Access to Healthcare Act Information Session. Register TODAY at… twitter.com/i/web/status/1…

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Founded in 1981, the Sickle Cell Association of Ontario (SCAO) is a volunteer, non-profit, community based organization working in collaboration with other organizations to improve the health and social well being of individuals and families with Sickle Cell Disease.

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Join us this Saturday January 16th at 2:00 PM for

Join us this Saturday January 16th at 2:00 PM for our 1st support group session of 2021.Reconnect with group members as we discuss 2020, how we are all coping and our plans for 2021.As COVID-19 remains a factor in our daily lives, this and future support group sessions, will continue to be held virtually via Zoom.Register today at http://bit.ly/SCAOPeerSupportThank you and we look forward to seeing you all then.#SCAO #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecellanemia #peersupport #supportgroup #support #advocacy #counselling #raisingawareness #education #community #selfcare #mentalhealth #mentalhealthmatters #health #healthylifestyle #therapy #onlinesupportgroup

Happy Holidays with Heartfelt Thanks From Us To YO

Happy Holidays with Heartfelt Thanks From Us To YOU!We here at the Sickle Cell Association of Ontario would love to thank you and yours for your support in 2020, which will assuredly go down as one of the most fascinating and remarkable years in history. This year has seen its many ups, downs and numerous pivots, but through it all the Sickle Cell community came together to learn from each other, grow with each other and most importantly, support each other. We hope this is the beginning of a powerful movement and commit to being a dependable, trustworthy pillar helping to keep this spirit of collaboration alive and strong. This year we were pleased to serve the community, along with partners like TAIBU, Camp Jumoke, Sickle Cell Disease Association of Canada (SCDAC), Ontario New Democratic Party, Vaughn African Canadian Association (VACA) and many others, with initiatives like our:Monthly Adult Support Group Sessions UJIMA COVID-19 Relief Fund Improve Access to Healthcare Act Annual Sickle Cell Community Holiday PartyIn 2021, our focus will be on passing and enacting the Improve Access to Healthcare Act, which ensures sickle cell patients are treated in a timely, respectful manner, regardless of where they seek treatment in the province. We hope we can count on your support in this endeavour.Stay tuned for further details in the coming weeks. Once again, we thank you for your continued support and wish you all a very happy holiday season filled with joy, laughter, friends, family, great food and excellent health with blessings for 2021 and beyond!From all of us here at the Sickle Cell Association of Ontario.Lisa Bailey - President Serena Thompson - Vice President Leslie Rivers - Director of Finance Marie Boyd - Director of Administrative Affairs Dr. Joel Moody - Director of Medical Support Ulysse Guerrier - Director of Patient Support Alvin Merchant - Director of Communications & Marketing Michael McKenzie - Director At Large#scao #sicklecell #sicklecellawareness #sicklecellwarrior #happyholidays #holidaygreetings #grateful #thankyou #community #covidrelief #family #healthiswealth #supportgroup #iaha #charity #ontario

Tis the season! It's time for the annual Sickle Ce

Tis the season! It's time for the annual Sickle Cell community holiday party with our long time partner Camp Jumoke. . Taking place on Saturday December 19th from 3:30 PM to 5:30 PM (EST) this years holiday event has gone virtual due to the challenges of COVID-19.Join us for a fun filled, family friendly afternoon of cookie baking, holiday games, Tik Tok dance challenges and of course the yearly visit from KENTE CLAUS!Register your whole family at http://bit.ly/SCDXmas2020 or by clicking the link in our bio before December 15th in order to receive your holiday supplies.PRIZES and GIFT cards will be sent to ATTENDEES ONLY! So mark the date and don't be late.Open to children, siblings and families living with Sickle Cell Disease.#scao #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecellcommunity #holidayseason #holidays #holidayparty #holidaycheer #childrensparty #kente #kenteclaus #tiktok #tiktokchallenge #christmas #christmascookies #christmasmusic #holidaygames #virtualparty #games #prizes

A standardized level of care is finally here!For

A standardized level of care is finally here!For years, individuals living with Sickle Cell Disease have dreaded going to the hospital when in crisis due to the treatment, more specifically, the lack of consistent, timely, unbiased treatment, they receive when they arrive at their local emergency department.Changing this has been one of the main goals the Sickle Cell Association of Ontario has had since our inception back in 1981.On Thursday November 19th, the Ontario NDP, will be tabling a Private Members Bill (PMB) entitled the Improve Access To Healthcare Act, which we helped create and proudly sponsored.The Improve Access To Healthcare Act will improve the care for patients who go to the ER by utilizing a universal protocol that will ensure sickle cell patients receive the same standard of care regardless of where they access it in the province.Ontario sickle cell patients will be able to access treatment quicker, reduce related complications all while reducing the average hospital stay from 10 days to 3 days.The bill is based on treatment protocols developed by medical professionals and sickle cell patients, here in Ontario, who took over 3 years creating these recommendations, that once implemented, WILL save lives!Join Dr. Madeline Verhovsek, Dr. Joel Moody and MPP Jill Andrew on Saturday November 21st at 2:00 PM (EST) on Zoom for a very SPECIAL Community Town Hall where we will discuss what the bill is about, how it works, why it's important and of course exactly how YOU and the entire sickle cell community can help make sure it becomes law!Register for the Zoom webinar at >> https://bit.ly/TheIAA2020 << or by clicking the link in our bioThe Sickle Cell Association of OntarioP.S. We will be LIVE STREAMING both the bill being brought to the floor and the SPECIAL Community Town Hall via our Facebook Page.#scao #sicklecell #sicklecellawareness #sicklecellanemia #sicklecelldisease #sicklecelladvocacy #healthcare #healthequity #onpoli #ondp #ndp #healthprotocol #patientadvocacy #endhallwayhealthcare #endhallwaymedicine #townhall #supportgroup #advocacy #law #disabilityawareness

Cannabis, marijuana, CBD, THC. Are they all the sa

Cannabis, marijuana, CBD, THC. Are they all the same? What are the differences and can they help those living with Sickle Cell Disease?Join us this coming Saturday October 24th at 2:00 PM (EST) as we have a candid conversation with Dr. Joel Moody about cannabis, it's overall effects and it's possible use in the treatment of sickle cell disease.We will be LIVE STREAMING the information portion on both our Facebook and Instagram pages at www.facebook.com/SickleCellON or www.instagram.com/sicklecellontarioSpaces are LIMITED and registration is RECOMMENDED. Register TODAY at http://bit.ly/CannabisSCD411We look forward to seeing you all on Saturday!#scao #adultsupportgroup #supportgroup #sicklecell #sicklecellanemia #sicklecelldisease #sicklecellawareness #sicklecellwarrior #cannabis #cannabiscures #marijuana #medicalmarijuana #cbd #cbdhealth #thc #alternativemedicine #naturalmedicine #420healing

STARTING AT 5 PM: Join our VP & Director, Program

STARTING AT 5 PM: Join our VP & Director, Programs as she discusses ethics and patient involvement in research on #TRTalks brought to you by the Translational Research Program at the University of Toronto.Zoom Meeting ID: 924 2285 8749.#SCAO #SickleCell #utoronto #'Reseach #patients

We are happy to support the SCDAC with the Sickle

We are happy to support the SCDAC with the Sickle Cell Education Day happening this upcoming Saturday October 3rd from 11:00 AM until 6:00 PM (EST).Tune in at 3:00 PM (EST) for a conversation on HEALTH EQUITY featuring Dr. Ahmar U. Zaidi and Alvin Merchant as they discuss creating real equity for SCD patients here in Canada and around the world. All moderated by SCDAC President Biba Tinga.Join them on Zoom, Facebook Live and Instagram Live via either our social media accounts or the SCDAC.ZOOM Webinar Info: Webinar ID: 856 2752 3136 Passcode: 905793We look forward to your participation and feedback.#scao #scdac #sicklecell #sicklecellanemia #sicklecellmatters #sicklecelldisease #sicklecellawareness #sicklecelladvocacy #healthequity #healthadvocate #healtheducation #educationday #redbloodcelldisorder #madeincanada #hematology #cmu #detroit #stayhome #staysafe #stayhealthy

With the summer slowly coming to an end and with t

With the summer slowly coming to an end and with the world attempting to return to "normalcy", it's now more important than ever for us to have and maintain healthy habits.From drinking 8 or more glasses of water a day, to washing our hands for more than 20 seconds to wearing a mask when in public indoor spaces, to taking your medications as prescribed, healthy habits will be very important for individuals living with sickle cell disease going forward.We recommend checking out our COVID-19 Checklist and Living with Sickle Cell posts on our website.https://sicklecellontario.ca/scp-covid19-checklist/https://sicklecellontario.ca/about-sickle-cell/living-with-sickle-cell/What are some of the healthy habits you've developed during this time?#scao #sicklecell #sicklecellanemia #sicklecellawareness #sicklecellwarrior #healthylifestyle #healthyhabits #covid19 #water #wearamask #washyourhands #healthiswealth #hydrate #exercise #didyouknow #tipsandtricks #tipoftheday #stayhome #staysafe #stayhealthy

***ONLINE SUPPORT GROUP DATE CHANGE***Due to an

***ONLINE SUPPORT GROUP DATE CHANGE***Due to an unforeseen scheduling conflict we have had to reschedule this months Adult Sickle Cell Support Group session to 24 hours later.The session will now occur this coming SUNDAY JULY 19th, 2020 at 1:30 PM.If you have already registered, you will be notified by email about the date change.There is still space available for this months support group where we will be having a Real Talk about Hydroxyurea with Dr. Jacob Pendergrast, so go save your seat today at bit.ly/HydroxyureaWe look forward to seeing you all there and being able to answer your questions about Hydroxyurea, the pros, the cons and everything in between.If you have any questions for Dr. Pendergrast but will not be able to attend or have any other general questions, please feel free to contact our Director of Patient Support, Ulysse Guerrier at patient.support@sicklecellontario.ca#scao #sicklecell #sicklecelldisease #sicklecellanemia #sicklecellawareness #sicklecellwarrior #supportgroup #datechange #newdate #zoom #zoommeeting #hydroxyurea #fda #fdaapproved✔ #sundayfunday #realtalk #qanda #questionperiod #truth #stayhome #staysafe #stayhealthy #prescription #medication #health

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