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November 2019

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2019
November

Sickle Cell Community Annual Children’s Christmas Party

Thank you for registering your family for the Sickle Cell Community’s Annual Children’s Christmas Party. Registration ensures that every child has an opportunity to receive a gift. 1 (One) gift [...]

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Nov 22, 2019
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Sickle Cell Community Annual Children’s Christmas Party

Go R.E.D. for Sickle Cell

Ontario Goes RED for Sickle Cell Awareness Month – Contest

September is Sickle Cell Awareness Month

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Advocacy1 Awareness7 Community News2 Education2 Fundraising Event1 In The News3 Interviews2 Press Release1 Public Service Announcements1 Sickle Cell Awareness Day2 Sickle Cell Awareness Month3 Treatment1

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Sickle Cell Association of Ontario @SickleCellON

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RT @AlexanderGlaros: Got a call from ER doc at 3am for a 6mo #sicklecellwarrior with dactylitis and pneumonia. Said it was “one of those fa…

Alexander Glaros @AlexanderGlaros

3 days ago

Got a call from ER doc at 3am for a 6mo #sicklecellwarrior with dactylitis and pneumonia. Said it was “one of those… twitter.com/i/web/status/1…

Sickle Cell Association of Ontario @SickleCellON

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Going away on vacation can fill many a #SickleCell patient with #anxiety as it brings with it a host of problems ma… twitter.com/i/web/status/1…

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We are just over a week away from the Sickle Cell Community Annual Children's Christmas Party next Sun. Dec 8th at… twitter.com/i/web/status/1…

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Founded in 1981, the Sickle Cell Association of Ontario (SCAO) is a volunteer, non-profit, community based organization working in collaboration with other organizations to improve the health and social well being of individuals and families with Sickle Cell Disease.

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It's the most wonderful time of the year!The Sic

It's the most wonderful time of the year!The Sickle Cell Association of Ontario (SCAO) the Sickle Cell Awareness Group Of Ontario(SCAGO) @scago.1 and Camp Jumoke @campjumoke invites you and your family to the Annual Sickle Cell Community Children's Christmas Party.On Sunday, December 8, 2019 from 1:00 PM to 5:00 PM at TAIBU Community Health Centre located at 27 Tapscott Road, Scarborough, Ontario M1B 4Y7 join us for an afternoon of family fun and holiday cheer.With plenty of food plus activities for the kids and a very special visit from Kente Claus himself, this event ensures that families affected by Sickle Cell Disease can come together and enjoy a time that is special for many around the world!All are welcome but ONLY children ages 0-17 years will be receiving gifts.Registration is required to ensure every child has the opportunity to receive a gift . Registration is open till midnight (12:00 AM) on Thursday, December 5th.Additional Event Details: FREE Parking Available Children MUST be accompanied by an adult Party is ONLY open to children with Sickle Cell Disease and their siblings 1 (One) Gift Per ChildFor more information and to register your family today, go to: https://www.sicklecellontario.ca/childrensxmaspartyWe look forward to seeing you there!! #scao #campjumoke #scago #sicklecell #sicklecellawareness #sicklecelldisease #sicklecellwarrior #sicklestrong #community ##childrensparty #christmas #christmasparty #gifts #kenteclaus #blacksanta #holidays #holidayseason #holidaycheer #family #toronto #event

#ThrowbackThursday to this past Saturday at the Un

#ThrowbackThursday to this past Saturday at the University of Toronto Scarborough Campus for the final session of the Black Governance and Leadership Project and graduation celebrations.For the past 4 months the board members of the Sickle Cell Association of Ontario had the opportunity and privilege to learn from some of the best minds on board governance and leadership all through an Afrocentric lense.This was made possible by TAIBU Community Health Centre, East Scarborough Boys And Girls Club, the Toronto chapter of Alpha Kappa Alpha Sorority Inc, University of Toronto Scarborough and the City of Toronto.We learned a lot over these past 4 months and can't wait to implement what we've learned in order to help us better serve the Sickle Cell community here in Ontario.We would like to thank all the organization's, speakers, mentors and fellow cohort members who made this a truly unique learning experience and one we feel every grassroots non-profit should attend.#scao #sicklecell #sicklecelldisease #grassroots #continuingeducation #afrocentric #nonprofit #governance #leadership #community #organization #blackexcellence #blackleaders #mentorship #higherlearning #project #graduation #graduationpictures #toronto #ontario

DID YOU KNOW... One of the most common myths about

DID YOU KNOW... One of the most common myths about Sickle Cell Disease is that it only affects people of African descent.This is absolutely FALSE.Sickle Cell Disease is the number 1 genetic disorder in the world because it affects people from all ethnic backgrounds including South and East Asian, Middle Eastern and Caucasian.This is why regardless of your ethnic background we recommend getting tested and knowing your Sickle Cell status. Especially in today's world of biodiversity this just makes more sense.Learn more by visiting the link in our bio or by going directly to www.sicklecellontario.ca#scao #knowyourstatus #sicklecell #sicklecelldisease #sicklecellanemia #sicklecellawareness #sicklecellstrong #redbloodcells #genetics #geneticdisorder #genetictesting #biodiversity #ethnicity #gettested #myth #trueorfalse #healthmatters #awareness #didyouknow #fyi

I Choose Life Fundraising Brunch Cancellation Noti

I Choose Life Fundraising Brunch Cancellation NoticeThe Sickle Cell Association of Ontario, regrets to inform you that the I Choose Life Fundraising Brunch that was scheduled for this coming Sunday October 20th, 2019 has been cancelled.The S.C.A.O. remains steadfast in our commitment to being a fiscally responsible organization. As a board, we continuously review our obligations and make appropriate adjustments that serves both the association and Sickle Cell community at large, best interests.In our attempt to provide the best possible experience for the I Choose Life Brunch, we put targets in place that needed to be met in order to proceed with this fundraiser. In light of not meeting these targets we’ve made the difficult decision to cancel this Sunday’s event.We look forward to creating a truly memorable fundraising experience in 2020, and wish to thank you all for your continued support throughout the years.Sincerely,Sickle Cell Association of Ontario #scao #ichooselife #fundraiser #brunch #event #cancellation #apology #moretocome #bestisyettocome

The fight to change lives for the millions of Warr

The fight to change lives for the millions of Warriors worldwide and the thousands here in Canada can not be done without your help.As part of our ongoing #GoREDforSickleCell campaign we want to remind everyone that the Sickle Cell Association of Ontario is a charity that for 38 years of serving the Sickle Cell community here in Ontario we've done through private donations, no government funding whatsoever.As we enter a next decade of community service we will continue to need YOU! Whether it's your time, expertise or money, we will need you to DONATE in order to help us continue the work that we've done, doing and plan to do.Join the fight by clicking the link in the bio or by going to https://www.sicklecellontario.ca/donate#scao #sicklecell #sicklecellawareness #sicklecelldisease #sicklecelldisorder #donate #donations #donationsneeded #charity #helpus #helpothers #fightthegoodfight #community #communityservice #funding #helpneeded #givingtuesday #givegenerously

It's #FlashbackFriday and we're taking it back to

It's #FlashbackFriday and we're taking it back to our #SickleCellAwarenessMonth event with our partners Camp Jumoke and TAIBU Community Health Centre at Nathan Phillips Square.While the event was a wet and cold one, the vendors, entertainment and speakers were all on fire!Once again we would like to thank Jay Martin for being such an amazing host, keeping everyone engaged and lively. We also want to thank our entertainers Courtney Taylor, Dwayne Morgan, C-Flava Dancers, the Black Star Collective, Storry, Venus, Ridgy, Tony Weekes and DJ Inspiration for adding their wonderful artistic energies to such an important cause.We also want to thank our speakers Senator Jane Cordy, Carolyn Bennett, Loni Smith, Farron Dozier, Venus and Julia for sharing why Sickle Cell Disease is an important one and how we can all help make life easier for those living with it on a daily basis. Special shoutout to MPP Mitzie Hunter and MPP Jill Andrew for stopping by to show their support and listen to attendees about thow their lives are impacted by the world's number 1 genetic disorder.Our day couldn't have happened without both our health partners and vendors like Braids For AIDS, Sapien, Canadian Blood Services, Ebony Singles Travel, Oxford College, A++ Smoothies, iBeads, Black Health Alliance, TAIBU Community Health Centre and Camp Jumoke.We look forward to seeing you all again next year where we plan to make it bigger, better and hopefully hotter and dryer. Stay tuned for details on that.All photos courtesy of Mr. @lawrencekerrmedia himself and @beyondthelenz.caTo see more pictures of this truly awesome day, head over to our Facebook Page at https://www.facebook.com/SickleCellON #scao #campjumoke #campjumoke25 #taibuchc #sicklecell #sicklecellawareness #sicklecellawarenessmonth #sicklecellanemia #sicklecelldisease #awareness #nathanphillipssquare #outdoors #rainraingoaway #vendor #health #entertainment #dj #speakers #charity #itwasagoodday

DID YOU KNOW... There are 8 types of Sickle Cell D

DID YOU KNOW... There are 8 types of Sickle Cell Disease? Below are the 8 types and a brief overview of each. What are the types of sickle cell disease?Hemoglobin is the protein in red blood cells that carries oxygen. It normally has two alpha chains and two beta chains. The four main types of sickle cell anemia are caused by different mutations in these genes.Hemoglobin SS diseaseHemoglobin SS disease is the most common type of sickle cell disease. It occurs when you inherit copies of the hemoglobin S gene from both parents. This forms hemoglobin known as Hb SS. As the most severe form of SCD, individuals with this form also experience the worst symptoms at a higher rate.Hemoglobin SC diseaseHemoglobin SC disease is the second most common type of sickle cell disease. It occurs when you inherit the Hb C gene from one parent and the Hb S gene from the other. Individuals with Hb SC have similar symptoms to individuals with Hb SS. However, the anemia is less severe.Hemoglobin SB+ (beta) thalassemiaHemoglobin SB+ (beta) thalassemia affects beta globin gene production. The size of the red blood cell is reduced because less beta protein is made. If inherited with the Hb S gene, you will have hemoglobin S beta thalassemia. Symptoms are not as severe.Hemoglobin SB 0 (Beta-zero) thalassemiaSickle beta-zero thalassemia is the fourth type of sickle cell disease. It also involves the beta globin gene. It has similar symptoms to Hb SS anemia. However, sometimes the symptoms of beta zero thalassemia are more severe. It is associated with a poorer prognosis.Hemoglobin SD, hemoglobin SE, and hemoglobin SOThese types of sickle cell disease are more rare and usually don’t have severe symptoms.Sickle cell traitPeople who only inherit a mutated gene (hemoglobin S) from one parent are said to have sickle cell trait. They may have no symptoms or reduced symptoms.#scao #sicklecell #sicklecelldisease #sicklecellanemia #sicklecelltrait #sicklecellawareness #redbloodcell #thalassemia #hemoglobin #genetics #geneticdisorder #mutation #anemia #beta #disease #fyi #didyouknow #facts #medicalterminology #learnsomethingnew

With ONLY 5 days left in our #ONGoesRED contest, w

With ONLY 5 days left in our #ONGoesRED contest, we want to remind everyone that there's still time to enter the contest and be entered for a chance to WIN a pair of tickets to our upcoming I CHOOSE LIFE Fundraising Brunch.Throughout the month we've been fortunate enough to partner with cities and towns around Ontario to have local landmarks lit red in support of Sickle Cell Awareness Month and Sickle Cell Disease.There's still time to catch certain landmarks like the Niagara Falls Peace Bridge, Welland Bridge 13 and Oakville Town Hall which has been red all month.For full contest details along with when each landmark will be lit red, visit www.sicklecellontario.ca/ONGoesRedcontestWe look forward to seeing all of the entries and will announce a winner by October 5th, 2019. Good luck!! #scao #sicklecell #sicklecellawareness #sicklecellawarenessmonth #sicklecelldisease #charity #charityevent #contest #contestgiveaway #contestalert #contestwinner #local #ontario #ontariocanada #yourstodiscover #peacebridge #niagarafalls #welland #oakville #follow #snap #post #tag

DID YOU KNOW... Sickle Cell Disease is one of the

DID YOU KNOW... Sickle Cell Disease is one of the most common causes of childhood strokes. With most occurrences happening between the ages of 3 and 14 years old.Form more information on strokes in children with sickle cell disease and what to be aware of, visit the link below.ow.ly/ms8c50wlTzq#SCAO #StrokePrevention #SickleCellAwarenessMonth #sicklecell #sicklecelldisease #sicklecellawareness #stroke #preventionisbetterthancure #childrenshealth #didyouknow #fyi #strokeawareness #bloodflow #oxygen #brain #brainhealth

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