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(416) 789-2855

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info@sicklecellontario.ca

Founded in 1981, the Sickle Cell Association of Ontario (SCAO) is a volunteer, non-profit, community based organization working in collaboration with other organizations to improve the health and social well being of individuals and families with Sickle Cell Disease.

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COMMUNITY LINKS

○ Sickle Cell 101
○ Sick Kids Haematology/Oncology
○ University Health Network Red Blood Cell Clinic

SCAO ON INSTAGRAM

A standardized level of care is finally here!For

A standardized level of care is finally here!For years, individuals living with Sickle Cell Disease have dreaded going to the hospital when in crisis due to the treatment, more specifically, the lack of consistent, timely, unbiased treatment, they receive when they arrive at their local emergency department.Changing this has been one of the main goals the Sickle Cell Association of Ontario has had since our inception back in 1981.On Thursday November 19th, the Ontario NDP, will be tabling a Private Members Bill (PMB) entitled the Improve Access To Healthcare Act, which we helped create and proudly sponsored.The Improve Access To Healthcare Act will improve the care for patients who go to the ER by utilizing a universal protocol that will ensure sickle cell patients receive the same standard of care regardless of where they access it in the province.Ontario sickle cell patients will be able to access treatment quicker, reduce related complications all while reducing the average hospital stay from 10 days to 3 days.The bill is based on treatment protocols developed by medical professionals and sickle cell patients, here in Ontario, who took over 3 years creating these recommendations, that once implemented, WILL save lives!Join Dr. Madeline Verhovsek, Dr. Joel Moody and MPP Jill Andrew on Saturday November 21st at 2:00 PM (EST) on Zoom for a very SPECIAL Community Town Hall where we will discuss what the bill is about, how it works, why it's important and of course exactly how YOU and the entire sickle cell community can help make sure it becomes law!Register for the Zoom webinar at >> https://bit.ly/TheIAA2020 << or by clicking the link in our bioThe Sickle Cell Association of OntarioP.S. We will be LIVE STREAMING both the bill being brought to the floor and the SPECIAL Community Town Hall via our Facebook Page.#scao #sicklecell #sicklecellawareness #sicklecellanemia #sicklecelldisease #sicklecelladvocacy #healthcare #healthequity #onpoli #ondp #ndp #healthprotocol #patientadvocacy #endhallwayhealthcare #endhallwaymedicine #townhall #supportgroup #advocacy #law #disabilityawareness

Cannabis, marijuana, CBD, THC. Are they all the sa

Cannabis, marijuana, CBD, THC. Are they all the same? What are the differences and can they help those living with Sickle Cell Disease?Join us this coming Saturday October 24th at 2:00 PM (EST) as we have a candid conversation with Dr. Joel Moody about cannabis, it's overall effects and it's possible use in the treatment of sickle cell disease.We will be LIVE STREAMING the information portion on both our Facebook and Instagram pages at www.facebook.com/SickleCellON or www.instagram.com/sicklecellontarioSpaces are LIMITED and registration is RECOMMENDED. Register TODAY at http://bit.ly/CannabisSCD411We look forward to seeing you all on Saturday!#scao #adultsupportgroup #supportgroup #sicklecell #sicklecellanemia #sicklecelldisease #sicklecellawareness #sicklecellwarrior #cannabis #cannabiscures #marijuana #medicalmarijuana #cbd #cbdhealth #thc #alternativemedicine #naturalmedicine #420healing

STARTING AT 5 PM: Join our VP & Director, Program

STARTING AT 5 PM: Join our VP & Director, Programs as she discusses ethics and patient involvement in research on #TRTalks brought to you by the Translational Research Program at the University of Toronto.Zoom Meeting ID: 924 2285 8749.#SCAO #SickleCell #utoronto #'Reseach #patients

We are happy to support the SCDAC with the Sickle

We are happy to support the SCDAC with the Sickle Cell Education Day happening this upcoming Saturday October 3rd from 11:00 AM until 6:00 PM (EST).Tune in at 3:00 PM (EST) for a conversation on HEALTH EQUITY featuring Dr. Ahmar U. Zaidi and Alvin Merchant as they discuss creating real equity for SCD patients here in Canada and around the world. All moderated by SCDAC President Biba Tinga.Join them on Zoom, Facebook Live and Instagram Live via either our social media accounts or the SCDAC.ZOOM Webinar Info: Webinar ID: 856 2752 3136 Passcode: 905793We look forward to your participation and feedback.#scao #scdac #sicklecell #sicklecellanemia #sicklecellmatters #sicklecelldisease #sicklecellawareness #sicklecelladvocacy #healthequity #healthadvocate #healtheducation #educationday #redbloodcelldisorder #madeincanada #hematology #cmu #detroit #stayhome #staysafe #stayhealthy

With the summer slowly coming to an end and with t

With the summer slowly coming to an end and with the world attempting to return to "normalcy", it's now more important than ever for us to have and maintain healthy habits.From drinking 8 or more glasses of water a day, to washing our hands for more than 20 seconds to wearing a mask when in public indoor spaces, to taking your medications as prescribed, healthy habits will be very important for individuals living with sickle cell disease going forward.We recommend checking out our COVID-19 Checklist and Living with Sickle Cell posts on our website.https://sicklecellontario.ca/scp-covid19-checklist/https://sicklecellontario.ca/about-sickle-cell/living-with-sickle-cell/What are some of the healthy habits you've developed during this time?#scao #sicklecell #sicklecellanemia #sicklecellawareness #sicklecellwarrior #healthylifestyle #healthyhabits #covid19 #water #wearamask #washyourhands #healthiswealth #hydrate #exercise #didyouknow #tipsandtricks #tipoftheday #stayhome #staysafe #stayhealthy

***ONLINE SUPPORT GROUP DATE CHANGE***Due to an

***ONLINE SUPPORT GROUP DATE CHANGE***Due to an unforeseen scheduling conflict we have had to reschedule this months Adult Sickle Cell Support Group session to 24 hours later.The session will now occur this coming SUNDAY JULY 19th, 2020 at 1:30 PM.If you have already registered, you will be notified by email about the date change.There is still space available for this months support group where we will be having a Real Talk about Hydroxyurea with Dr. Jacob Pendergrast, so go save your seat today at bit.ly/HydroxyureaWe look forward to seeing you all there and being able to answer your questions about Hydroxyurea, the pros, the cons and everything in between.If you have any questions for Dr. Pendergrast but will not be able to attend or have any other general questions, please feel free to contact our Director of Patient Support, Ulysse Guerrier at patient.support@sicklecellontario.ca#scao #sicklecell #sicklecelldisease #sicklecellanemia #sicklecellawareness #sicklecellwarrior #supportgroup #datechange #newdate #zoom #zoommeeting #hydroxyurea #fda #fdaapproved✔ #sundayfunday #realtalk #qanda #questionperiod #truth #stayhome #staysafe #stayhealthy #prescription #medication #health

HYDROXYUREA. The first ever @fda approved drug for

HYDROXYUREA. The first ever @fda approved drug for the treatment of Sickle Cell Disease. But even after 25+ years of being the go-to medication in the treatment of this disease, many individuals living with Sickle Cell Disease have grave misgivings about taking it as part of their treatment plan.Many point to the fact that the medical community is not being 100% forthcoming about all it's side effects and feel that they are being forced to take it.So for this month's adult sickle cell support session, we're sitting down with Dr. Jacob Pendergrast, a clinical hematologist in the Red Blood Cell clinic at the University Health Network, to have a REAL TALK about hydroxyurea. No obfuscation. No politics. No bs.Join us via Zoom on Saturday July 18th, 2020 at 1:30 PM for what promises to be one of the realest conversations you'll ever be able to have with a medical professional about hydroxyurea.You will not want to miss this, so tell a friend, register, save the date and we look forward to your participationREGISTER TODAY AT: bit.ly/Hydroxyurea or by clicking the link in our bio.#SCAO #hydroxyurea #sicklecell #sicklecellanemia #sicklecelldisease #sicklecellawareness #sicklecellwarrior #realtalk #medication #prescription #qualityoflife #treatment #fetalhemoglobin #hematology #hemaglobinopatias #redbloodcells #cancerdrug #fda #fdaapproved✔ #beinformed #supportgroup

Managing life with Sickle Cell can many times feel

This coming Friday June 19th, 2020 is World Sickle

This coming Friday June 19th, 2020 is World Sickle Cell Awareness Day.This year the Sickle Cell Association of Ontario is proud to produce and be a part of 2 great online events that will create awareness and generate conversation about the world's number 1 genetic disorder.Join us on Friday June 19th at 1:00 PM (EST) for a conversation about the many FACES and races that are affected by Sickle Cell Disease. Hosted by our very own Director of Patient Support Ulysse Guerrier, we will be speaking with members of the community who most would not think are affected by Sickle Cell Disease.REGISTER at bit.ly/wsd-faces or by clicking the link in our bio.At 5:00 PM (EST) on Friday June 19th, Ulysse will be part of a nation wide panel, hosted by the Sickle Cell Disease Association of Canada as him and others raise their VOICES to discuss various aspects of living with Sickle Cell Disease. Everything from migrating to a new country to relationships to diet will be part of the discussion.REGISTER at bit.ly/VOICES-VOIXRegistration for both events are mandatory so we recommend doing so early and marking your calendar so you don't miss either of these discussions.We hope to see you all at both of these events as we continue to C.A.R.E. (Counsel, Advocate, Raise Awareness and Educate) Ontario, Canada and the World about Sickle Cell Disease.For more information about Sickle Cell Disease and the Sickle Cell Association of Ontario, feel free to visit us at www.sicklecellontario.ca#SCAO #SCDAC #SCD #sicklecell #sicklecelldisease #sicklecellanemia #sicklecellawareness #sicklecellanemia #sicklecelltrait #worldsicklecellday #faces #voices #voix #zoom #zoommeeting #online #discussion #care #juneteenth #health ##healthmatters #advocate #educate #support #stayhome #staysafe #stayhealthy

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