Service Category

Advocacy

The Sickle Cell Association of Ontario has been providing advocacy for those living with the disease for the past 30 years to ensure the needs of the community is met by their health care providers, employers and school administration.

During times of crisis, individuals with Sickle Cell Disease may not be in a position to advocate for themselves due to the pain.  At such time, the Association will advocate on behalf of these individuals to ensure that they are receiving timely and adequate care.

As a result of our advocacy over the years, newborn screening for Sickle Cell Disease was instituted in Ontario in 2006.  This will ensure that more individuals will be aware of their Sickle Cell status from an early age and will be able to cope with the systems of the disease and prevent passing it on to their offspring.