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Posts tagged “information”

5 Tips to Spot & Stop The Spread of Misinformation During COVID-19 (and in general)

We All Have A Responsibility In this age of social media where is it is easy to access information on the web, it is important to be responsible regarding what [...]

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Apr 2, 2020
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Latest Posts

Navigating The New Norm: Sickle Cell Style

Sickle Cell Patient COVID-19 Checklist

Sickle Cell Patient COVID-19 Checklist

Sickle Cell Patient COVID-19 Checklist

5 Tips to Spot & Stop The Spread of Misinformation During COVID-19 (and in general)

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Advocacy1 Awareness10 Community News2 Counselling & Support1 Education6 Fundraising Event1 In The News7 Interviews2 Press Release1 Public Service Announcements5 Sickle Cell Awareness Day2 Sickle Cell Awareness Month3 Treatment2

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Sickle Cell Association of Ontario @SickleCellON

3 months ago

Our Adult Sickle Cell Support Group is BACK & BETTER than EVER!Join us this Sat Apr 18 at 1:30 PM for our 1st ONL… twitter.com/i/web/status/1…

Sickle Cell Association of Ontario @SickleCellON

5 months ago

RT @jca_president: Ms. Lilly, founder of the @SickleCellON turned 98 years young and celebrated with @JCA_Ontario at our #IWD celebration.…

JCA President @jca_president

5 months ago

Ms. Lilly, founder of the @SickleCellON turned 98 years young and celebrated with @JCA_Ontario at our #IWD celebrat… twitter.com/i/web/status/1…

Sickle Cell Association of Ontario @SickleCellON

6 months ago

RT @AlexanderGlaros: Got a call from ER doc at 3am for a 6mo #sicklecellwarrior with dactylitis and pneumonia. Said it was “one of those fa…

Alexander Glaros @AlexanderGlaros

6 months ago

Got a call from ER doc at 3am for a 6mo #sicklecellwarrior with dactylitis and pneumonia. Said it was “one of those… twitter.com/i/web/status/1…

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Founded in 1981, the Sickle Cell Association of Ontario (SCAO) is a volunteer, non-profit, community based organization working in collaboration with other organizations to improve the health and social well being of individuals and families with Sickle Cell Disease.

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With the summer slowly coming to an end and with t

With the summer slowly coming to an end and with the world attempting to return to "normalcy", it's now more important than ever for us to have and maintain healthy habits.From drinking 8 or more glasses of water a day, to washing our hands for more than 20 seconds to wearing a mask when in public indoor spaces, to taking your medications as prescribed, healthy habits will be very important for individuals living with sickle cell disease going forward.We recommend checking out our COVID-19 Checklist and Living with Sickle Cell posts on our website.https://sicklecellontario.ca/scp-covid19-checklist/https://sicklecellontario.ca/about-sickle-cell/living-with-sickle-cell/What are some of the healthy habits you've developed during this time?#scao #sicklecell #sicklecellanemia #sicklecellawareness #sicklecellwarrior #healthylifestyle #healthyhabits #covid19 #water #wearamask #washyourhands #healthiswealth #hydrate #exercise #didyouknow #tipsandtricks #tipoftheday #stayhome #staysafe #stayhealthy

***ONLINE SUPPORT GROUP DATE CHANGE***Due to an

***ONLINE SUPPORT GROUP DATE CHANGE***Due to an unforeseen scheduling conflict we have had to reschedule this months Adult Sickle Cell Support Group session to 24 hours later.The session will now occur this coming SUNDAY JULY 19th, 2020 at 1:30 PM.If you have already registered, you will be notified by email about the date change.There is still space available for this months support group where we will be having a Real Talk about Hydroxyurea with Dr. Jacob Pendergrast, so go save your seat today at bit.ly/HydroxyureaWe look forward to seeing you all there and being able to answer your questions about Hydroxyurea, the pros, the cons and everything in between.If you have any questions for Dr. Pendergrast but will not be able to attend or have any other general questions, please feel free to contact our Director of Patient Support, Ulysse Guerrier at patient.support@sicklecellontario.ca#scao #sicklecell #sicklecelldisease #sicklecellanemia #sicklecellawareness #sicklecellwarrior #supportgroup #datechange #newdate #zoom #zoommeeting #hydroxyurea #fda #fdaapproved✔ #sundayfunday #realtalk #qanda #questionperiod #truth #stayhome #staysafe #stayhealthy #prescription #medication #health

HYDROXYUREA. The first ever @fda approved drug for

HYDROXYUREA. The first ever @fda approved drug for the treatment of Sickle Cell Disease. But even after 25+ years of being the go-to medication in the treatment of this disease, many individuals living with Sickle Cell Disease have grave misgivings about taking it as part of their treatment plan.Many point to the fact that the medical community is not being 100% forthcoming about all it's side effects and feel that they are being forced to take it.So for this month's adult sickle cell support session, we're sitting down with Dr. Jacob Pendergrast, a clinical hematologist in the Red Blood Cell clinic at the University Health Network, to have a REAL TALK about hydroxyurea. No obfuscation. No politics. No bs.Join us via Zoom on Saturday July 18th, 2020 at 1:30 PM for what promises to be one of the realest conversations you'll ever be able to have with a medical professional about hydroxyurea.You will not want to miss this, so tell a friend, register, save the date and we look forward to your participationREGISTER TODAY AT: bit.ly/Hydroxyurea or by clicking the link in our bio.#SCAO #hydroxyurea #sicklecell #sicklecellanemia #sicklecelldisease #sicklecellawareness #sicklecellwarrior #realtalk #medication #prescription #qualityoflife #treatment #fetalhemoglobin #hematology #hemaglobinopatias #redbloodcells #cancerdrug #fda #fdaapproved✔ #beinformed #supportgroup

Managing life with Sickle Cell can many times feel

This coming Friday June 19th, 2020 is World Sickle

This coming Friday June 19th, 2020 is World Sickle Cell Awareness Day.This year the Sickle Cell Association of Ontario is proud to produce and be a part of 2 great online events that will create awareness and generate conversation about the world's number 1 genetic disorder.Join us on Friday June 19th at 1:00 PM (EST) for a conversation about the many FACES and races that are affected by Sickle Cell Disease. Hosted by our very own Director of Patient Support Ulysse Guerrier, we will be speaking with members of the community who most would not think are affected by Sickle Cell Disease.REGISTER at bit.ly/wsd-faces or by clicking the link in our bio.At 5:00 PM (EST) on Friday June 19th, Ulysse will be part of a nation wide panel, hosted by the Sickle Cell Disease Association of Canada as him and others raise their VOICES to discuss various aspects of living with Sickle Cell Disease. Everything from migrating to a new country to relationships to diet will be part of the discussion.REGISTER at bit.ly/VOICES-VOIXRegistration for both events are mandatory so we recommend doing so early and marking your calendar so you don't miss either of these discussions.We hope to see you all at both of these events as we continue to C.A.R.E. (Counsel, Advocate, Raise Awareness and Educate) Ontario, Canada and the World about Sickle Cell Disease.For more information about Sickle Cell Disease and the Sickle Cell Association of Ontario, feel free to visit us at www.sicklecellontario.ca#SCAO #SCDAC #SCD #sicklecell #sicklecelldisease #sicklecellanemia #sicklecellawareness #sicklecellanemia #sicklecelltrait #worldsicklecellday #faces #voices #voix #zoom #zoommeeting #online #discussion #care #juneteenth #health ##healthmatters #advocate #educate #support #stayhome #staysafe #stayhealthy

Mental health is something many are now acknowledg

Mental health is something many are now acknowledging as being a very important part of our overall health. From mindfulness to breathing techniques to meditation, they all can impact us, regardless of our health status, in very postitive ways.We are really excited to announce that moving forward our Director of Patient Support will be hosting Weekly Wellness session via Zoom beginning tomorrow Tuesday May 19th.Join us every Tuesday from 9:00 AM to 10:00 AM for TRANSCEND TUESDAY where tips, techniques and exercise are given in order to navigate the week and life with a healthy focus.Every Friday from 4:00 PM to 5:30 PM join us for FREE YOUR MIND FRIDAYS, where letting go is the only task that matters. The week is over and whatever it brought you, it's time to move on and embrace the weekend.For more information and to register for these weekly session, please contact our Director of Patient Support at patient.support@sicklecellontario.ca, visiting our website (link in bio) or DM'ing us for more info.We can't wait to connect with you all!#SCAO #weeklywellness #transcend #transcendtuesdays #freeyourmind #freeyourmindfridays #healthiswealth #healthylifestyle #mentalhealth #mentalhealthawareness #meditation #mindfulness #breathe #letgo #lifeskills #zoom #zoommeeting #sicklecell #sicklecellawareness #sicklecellwarrior

With many places starting to (or in the process) o

With many places starting to (or in the process) of re-opening, many of us are already in the process of adapting to the new ways of doing things.Our latest article looks at how COVID-19 has changed things for everyone, with a focus on those affected by sickle cell disease and what the future holds for us all plus some great advice on how to cope moving forward.Read the full article here: https://sicklecellontario.ca/navigating-new-norm/#SCAO #covid19 #sicklecell #sicklecelldisease #sicklecellawareness #sicklecellwarrior #mentalhealth #mentalhealthawareness #cognitivebehavioraltherapy #mindfulness #cbt #cbttherapy #coping #copingskills #depression #anxiety #hope #stayconnected #embracechange #newnormal #newnorm #staysafe #stayhealthy #newpost #thefutureisbright

Our monthly Adult Support Group Meeting is this Sa

Our monthly Adult Support Group Meeting is this Saturday May 16th at 1:30 PM.Once again this meeting will be held virtually via Zoom. We highly recommend downloading, installing and setting up the app PRIOR to the meeting.This month we welcome Elnaz Saleh (O.T.) as she introduces us to Cognitive Behavioural Therapy (CBT) and how it can be used to cope with life's challenges in a healthy, productive way.REGISTRATION is MANDATORY in order to attend.Register in advance for this meeting at: https://us02web.zoom.us/webinar/register/WN_85tLpqdkQHyRjyYGPTeyGA After registering, you will receive a confirmation email containing information about joining the webinar. ---------- #SCAO #sicklecell #sicklecelldisease #sicklecellawareness #sicklecellwarrior #cognitivebehavioraltherapy #coping #copingskills #cbt #support #supportgroup #zoom #zoommeeting #lifeskills #therapy #covid19 #occupationaltherapy #ontarioshores #ontario #taibuchc #healthymind #healthylife #stayhome #staysafe #stayhealthy

Giving back is an important part of being a commun

Giving back is an important part of being a community agency. At least to us it is.We are SUPER excited to announce that we have launched the SCAO Ujima COVID-19 Relief Fund! A $5,000 fund created solely with the purpose of helping Sickle Cell community members purchase essential food and other items during this pandemic.Starting TODAY we are taking applications from our community members who may need assistance during this once in a lifetime event.We encourage those in need to head on over to https://www.sicklecellontario.ca/CRF or by clicking the link in our bio and APPLY NOW!At this time the SCAO Ujima COVID-19 Relief Fund is ONLY open to residents of Ontario, Canada.All Relief Fund details can be found on the application page.#SCAO #ThisIsHowWeCARE #SCAOCares #sicklecell #sicklecellwarrior #sicklecellawareness #socialgood #givingback #community #communityservice #relief #philanthropy #nonprofit #giveback #covid19 #giftcard #healthyfood #foodsafety #acceptingapplications #helpus #helpothers #heretohelp #stayhome #staysafe #stayhealthy

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